Ms Jocelyn McLean is ADRI’s Mesothelioma Support Coordinator. Jocelyn has many years’ experience caring for patients following surgery for lung cancer and mesothelioma at Royal Prince Alfred Hospital.
Jocelyn developed a ‘well living support programme’ for survivors and carers, and co-authored, with Professor Brian McCaughan, a book entitled: ‘Diagnosis & Treatment: The Journey of a Patient with Malignant Pleural Mesothelioma’. She also contributed to the development of evidence based Guidelines for the Diagnosis and treatment of Malignant Pleural Mesotheliomapublished by ADRI in 2013 and the Understanding Pleural Mesothelioma. A guide for people with cancer, their families and friends published by Cancer Council Australia in 2015.
At ADRI she utilises her knowledge and experience of patient care and supporting carers; drawing from current survivorship research and carer need research to provide telephone, face-to-face support and group meetings. She works with established professional agencies in mesothelioma to provide current evidence based information to health professionals and local communities across NSW.
• Have you just been diagnosed with malignant mesothelioma?
• Do you need more information?
• Are you a carer for someone with malignant mesothelioma?
• Are you living with malignant mesothelioma?
• Have you been exposed to asbestos?
Do you need to talk?
Call Jocelyn on 02 97679854, or Toll Free 1300 237 400
Bernie Banton Centre
Gate 3 Hospital Road
Concord NSW 2139
T: 02 9767 9800
F: 02 9767 9860
Understanding Pleural Mesothelioma has just been published by the Cancer Council in collaboration with the ADRI. The ADRI gratefully acknowledges that the development and publication of this booklet was funded by the Heads of Asbestos Coordination Authorities. The information in this booklet is based on an extensive review of the medical literature and clinical practice guidelines developed by the ADRI and approved by the National Health & Medical Research Council.
Understanding Pleural Mesothelioma A guide for people with cancer, their families and friends is available from the Cancer Council and the ADRI. If you would like a copy please call ADRI 02 9767 9800 or visit www.cancercouncil.com.au
Lung Foundation Australia supports all aspects of lung health from asthma to cancer to COPD and has a proud history of community education. They are a toll-free patient information and support centre with a lung care nurse. They are a national organisation which supports research, develops educational fact-sheets, trains health professionals, and undertakes community awareness activity and advocacy around Australia.
Lung Foundation Australia
Level 2, 11 Finchley Street
Milton QLD 4064
PO Box 1949
Milton QLD 4064
T: + 61 (0) 7 3251 3600
F: + 61 (0) 7 3368 3564
Toll Free: 1800 654 301 (within Australia)
Lung Cancer Network Australia – Lung Foundation Australia
Asbestos Diseases Foundation of Australia Inc. (adfa) is a not-for profit organisation working to provide support to people living with asbestos-related diseases, family members, carers and friends. Adfa is a community based group and has a long history of being engaged in advocacy work and providing information on the dangers of asbestos within the Australian community.
Asbestos Diseases Support Group, Wagga Wagga and District
PO Box 8190
Wagga Wagga NSW 2650
Contact (1): Inge Webster
T: (02) 6922 3826
Contact (2): Olga Seaman
T: (02) 6922 5414
Cancer Council NSW is a community funded, community focused cancer charity dedicated to the defeat of cancer. They are a member of Cancer Council Australia, along with our state and territory Cancer Council counterpart.
On their website you will find information on mesothelioma and a wide range of support information.
153 Dowling Street
Woolloomooloo NSW 2011
T: 02 9334 1900
Cancer Helpline : 13 11 20
Chris O’Brien Lifehouse offers advanced medical and complementary therapies, as well as emotional support and sanctuary all in one place with a holistic, patient centric model of care providing services for public and private patients.
119-143 Missenden Road
Camperdown, NSW, 2050
The Dust Diseases Board‘s statutory function is to administer the Workers’ Compensation (Dust Diseases) Act 1942-67 and is subject to the direction of the Minister for Finance, through to the New South Wales Parliament. The Board has exclusive jurisdiction to determine all matters in respect of a claim for compensation including questions of identity, dependency and fact of disablement and whether an award should be made.
The Board also provides compensation screening which includes: x-rays, lung function tests and clinical examination by a respiratory physician, who is generally able to provide an indication as to whether a dust disease has developed.
82 Elizabeth Street
Sydney NSW 2000
Telephone: (02) 8223 6600 Toll-free: 1800 550 027 Fax: (02) 8223 6699 Email: email@example.com
The San Cancer Support Centre (SCSC) and allied residential facility at the Jacaranda Lodge were founded in 1993 to provide support for people in the community affected by cancer. The SCSC is a unique community outreach service operated by Sydney Adventist Hospital providing a ‘one stop’ centre offering disease specific support sessions, information, resources, education and counselling, all free of charge to not only Sydney Adventist Hospital patients, but also other hospital cancer patients and their families – regardless of their location throughout Australia or the stage of their illness.
The San Cancer Support Centre runs a Lung & Respiratory Cancer support group fortnightly on alternate Thursdays from 10:00 am- 12:00pm
Sydney Adventist Hospital
185 Fox Valley Road
T: 02 9487 9061
The Sydney Survivorship Centre established in 2013 is a place where cancer survivors have access to a dedicated team of multidisciplinary professionals to support their individual needs following a cancer diagnosis. The Centre also provides educational resources, holds public forums for cancer patients and their families and other events including workshops.
See Events for current program
Concord Cancer Centre
T: 02 97677487
The Queensland Asbestos Related Disease Support Society Inc. (QARDSS) is a self-funded organisation that aims to provide people affected by asbestos related disease and their families with emotional support as well as contacts for the best possible medical treatment and other relevant assistance.
Level 3, Specialist Centre
Brisbane Private Hospital
259 Wickham Terrace
Brisbane QLD 4000
The Asbestosis and Mesothelioma Support Group (AMSG) was established to offer assistance, support, information and guidance to people affected by or concerned about asbestos related diseases.
PO Box 1080,
Coolangatta, Qld 4225
Asbestoswise provides a range of community awareness and support programs.
2nd floor 247-251 Flinders Lane
Melbourne Vic 3000
Telephone: 03 9654 9555
Asbestos Council of Victoria / Gippsland Asbestos Related Diseases Support Inc.(GARDS) is a non-profit, non-government, voluntary organisation dedicated to supporting the victims of asbestos and their families. GARDS also works to raise the level of asbestos awareness in the community, industry and at all levels of government.
GARDS / ACV
PO Box 111
Moe, Victoria 3825
The Asbestos Victims Association (SA) Inc focuses on victim support, advocacy for victims and their families and legislative reform to provide a better deal for victims and their families.
Level 3, 60 Waymouth Street Adelaide SA 5065
PO Box 4066 Elizabeth South 5112
Telephone: 08 8212 6008 Fax: 08 8212 7008 Email: firstname.lastname@example.org
The Asbestos Diseases Society of South Australia Inc (ADSSA) was formed on 16 June 2005 in response to some gaps in service provision for asbestos victims and their families. ADSSA provides counselling, support and information for those victims and family and friends who develop asbestos related diseases.
30-40 Hurtle Square
Adelaide SA 5000
The Asbestos Diseases Society of Australia (Inc) (ADSA) is an incorporated registered charitable organisation, founded in 1979 to provide counselling and support services to those who develop asbestos-related diseases and their families. It also provides economic assistance to those who suffer financial hardship or social disadvantage as a result of contracting asbestos-related illness. The ADSA raises community awareness of the dangers associated with asbestos in the community and fundraises for medical research and support services.
219 Main Street
Osborne Park WA 6017
The Asbestos Free Tasmania Foundation was established in May 2010 as a not-for-profit incorporated organisation aimed at supporting former workers who have developed asbestos related disease, current workers at risk and the broader community through education, information, referral and advice.
Tasmanians to be free from the risk of exposure to asbestos and asbestos related disease
To promote a safer, healthier Tasmania through assisting to reduce the number of people exposed to asbestos and reducing the incidence of asbestos related disease in the Tasmanian community.
MacMillian Cancer Support provides extensive information on different types of cancer including malignant mesothelioma and links to support services.
89 Albert Embankment
London, SE1 7UQ
Tel: +44 20 7840 7840
Fax: +44 20 7840 7841
1317 King Street
Alexandria, VA 22314